Challenges People With Rare Diseases Face
- Devastating medical problems and symptoms
- Difficulty getting a proper diagnosis
- Struggle to find information
- Feeling lonely or isolated
- Limited or no treatment options
Rare Disease Day encourages people to host events and educate people on specific diseases that help people understand how this impacts their lives. The National Organization for Rare Disorders (NORD) helps connect people with rare diseases with others just like them, which always helps them cope better.
Many times, patients with rare diseases don’t know where to get the help they need. Between treatments, surgeries, waiting for test results and finding the strength to keep fighting for a better life, this can be overwhelming. They often need to find support groups where they can simply talk about what they’re going through. To learn more, visit www.rarediseaseday.us.
