Most people are fascinated by rare things—especially on day like February 29th (Leap Day),which only comes around every four years. There’s a certain fascination behind leap year because it’s rare, which is why on the last day of February, Rare Disease Day takes place, in order to raise awareness about rare diseases that impact the few, but that can help educate many people about the diseases we don’t know much about.
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The 2016 global theme is “Patient Voice,” which recognizes the crucial role that patients play in voicing their needs and promoting change that improves their lives and the lives of their family and caregivers. A rare disease is considered one that affects fewer than 200,000 people. There are over 7,000 rare diseases affecting 30 million Americans and for most, there is no cure.